8760 Manchester Road
St. Louis, MO 63144-2724
NAPEStLouis@sbcglobal.net
Tel / Fax: 314-301-7345
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NAPE, Inc. 8760 Manchester Road St. Louis, MO 63144-2724 NAPEStLouis@sbcglobal.net Tel / Fax: 314-301-7345 |
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Coping Until the Cure: A PXE Patient-Centered Conference 2010 NAPE Conference Philadelphia, Pennsylvania October 22 and 23, 2010 |
Download Registration Form (pdf 48 KB) |
| Schedule |
 Click to Listen (833.6 KB AUDIO) |
| Friday evening, October 22, 2010 | ||
| 4:00-4:15 pm | Introductions/Conference Information | |
| 4:15-5:45 pm | NAPE's Story - Kenneth Neldner with Lenore Seeuwen | |
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| 6:00-9:00 pm | Dinner, discussion, making new PXE friends | |
| 7:00 pm | Gene Patents Ruled Illegal - Sandra Park, American Civil Liberties Union | |
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| Saturday, October 23, 2010 (Breakfast on your own) | ||
| 8:30-8:45 am | Introductions/Conference Information | |
| 8:45-10:00 am | Nanotechnology, AMD and PXE - Kattesh Katti, PhD, and Ravi Shukla, PhD | |
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| 10:00-10:20 am | Break | |
| 10:20-12:00 noon | What Patients Need to Know And Do About PXE - Berthold Struk, MD, PhD | |
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| 12:00-12:15 pm | Break | |
| 12:15-1:45 pm | Lunch | |
| 1:45-3:00 pm | Supporting Research with Human Biomaterials - Lee Ducat with NDRI Staff | |
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| 3:00-3:15 pm | Break | |
| 3:15-4:30 pm | PXE and Nutrition Research - Matthew Lange | |
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| 4:30-5:00 pm | Board Update | |
| 5:00 pm | Conference Adjourns | |
| Home | Current Issue | Must Reading | Selected Articles | FAQ | Archive Issues | Member Info | Conference |